Supporting MND/ALs
Kirstie heads up the MND/ALS/PLS team at You Nutrition Clinic, alongside Kerry (RNTP), Deborah (RD) and Rachael (RN), with support from Rae, our breath and movement practitioner. We work with people at any stage of their journey, from symptom onset to the advanced stage. We work closely together as a team on every case to ensure our approach is empathetic, thorough, and evidence-based. While there is no cure for MND/ALS, we believe that there is a lot that can be done to support symptoms, wherever you are on your MND/ALS journey.
no stone unturned
our 'all-in' programme for supporting Mnd/als
MND/ALS is complex, and there is no 'easy fix' for many of the symptoms that clients present with. With years of experience in the field and having reviewed all client cases, we know that slow, steady and consistent is the best intervention. Time and time again, clients come to us having been to a practitioner who has rushed straight to a 'detox', bypassing the basics of health optimisation. The results can be incredibly harmful.
This is why we developed No Stone Unturned, our comprehensive support programme, for those living with MND/ALS. This multi-faceted, tiered continual support package, which is designed to take the stress of following a functional approach, includes regular regular consultations and check-ins with Kirstie or Kerry, and incorporates functional testing, diet and nutraceutical guidance, and support identifying and reducing exposure to environmental factors.
We start by taking a full health history, mapping your life and looking for any drivers of symptoms and health concerns. We focus on dietary intake and optimising gut health, and then work systematically throughout the body, using nutrients, lifestyle changes and environmental considerations to optimise pathways, while managing the day to day symptoms of your diagnosis. Additional support includes bespoke breath and movement support with Rae, and patient advocacy consultations with Rachael.
Because of the complexity of your diagnosis, we recommend that clients to commit to consultations for a minimum of 6 months, at a frequency that best suits your need for support and your finances. Please note that the minimum requirement is one consultation every 8 weeks. We are no longer able to work with clients who are not able to commit to our minimum requirement, as regular monitoring of weight, dietary intake and supplements is essential.
Note that consultations can be via Zoom chat function or via Practice Better messenger for those who are not able to speak.
optimisation phase
tier 1: foundational
Monthly cost: £195
- An initial 1-hour comprehensive assessment and information gathering session
- A 1-hour consultation every month to support with bespoke diet, lifestyle, and nutraceutical recommendations
- Quick questions answered between consultations through our online portal
- Access to the You Nutrition Clinic online MND/ALS support community
- Access to the You Nutrition Clinic online carers' support community
- Access to our Movement and Breath on-demand course (coming soon)
tier 2: Paced
Monthly cost: £285
- An initial 1-hour comprehensive assessment and information gathering session
- A 1-hour consultation every month to support with bespoke diet, lifestyle, and nutraceutical recommendations
- Quick questions answered between consultations through our online portal
- One intermittent 30-minute 'check-in' consultation two weeks following your consultation
- Access to the You Nutrition Clinic online MND/ALS support community
- Access to the You Nutrition Clinic online carers' support community
- Access to our Movement and Breath on-demand course (coming soon)
tier 3: intensive
Monthly cost: £375
- An initial 1-hour comprehensive assessment and information gathering session
- A 1-hour consultation twice monthly to support with bespoke diet, lifestyle, and nutraceutical recommendations
- Quick questions answered between consultations through our online portal
- Access to the You Nutrition Clinic online MND/ALS support community
- Access to the You Nutrition Clinic online carers' support community
- Access to our Movement and Breath on-demand course (coming soon)
Tier 4: the 'All in'
Monthly cost: £565
- An initial 1-hour comprehensive assessment and information gathering session
- A 1-hour consultation twice monthly to support with bespoke diet, lifestyle, and nutraceutical recommendations
- Two monthly intermittent 30-minute 'check-in' consultations
- Quick questions answered between consultations through our online portal
- Access to the You Nutrition Clinic online MND/ALS support community
- Access to the You Nutrition Clinic online carers' support community
- Access to our Movement and Breath on-demand course (coming soon)
Bespoke packages
We can create packages that are bespoke to your needs. Discuss this with your practitioner.
Note that all packages are based on UK pricing.
There is a 5 % surcharge on international packages which is due to the cost incurred through Stripe.
Clients are required to commit to a minimum three months of consultations, and must provide a minimum one months' notice if they would like to end their support package to provide their practitioner with enough time to tie up any loose ends and ensure that you are safely moving forward.
Additional support & bolt on services
- One hour and 30 minute check-ins are available with Rachael, our MND consultant nurse and patient advocate
- Breath assessment, 1-1 sessions and small group sessions with Rae, our highly experienced Breath and Movement practitioner
- Automated functional testing (£200 per month)
- A subscription to our nourishing powder and liquid supplement range, developed in collaboration with Synergetic Botanical, to support your systems using foods and herbs (£100 per month; up to 4 products selected by your practitioner)
To learn more about costs of these additional services, and to better understand how our No Stone Unturned programme can support you, reach out to us at admin@younutritionclinic.com
continuation phase
This is a continual support package that includes regular check-ins with your RNTP at a pace that suits you, access to the You Nutrition Clinic online MND/ALS support community. For safety purposes, the minimum subscription we offer is a one hour consultation every eight weeks. Magdalena, our office manager, will put together a package for you based on your needs.
ketogenic diet support
We now offer 1-1 support for those who would like to follow a ketogenic diet. Deborah and Kerry have both completed advanced ketogenic diet training with the American Nutrition Association and are available to support you.
We offer two packages:
- A three-month package consisting of an initial 1-hour consultation and 12 x 30-minute weekly sessions (£1350)
- A three-month package consisting of an initial 1-hour consultation and 6 x 30-minute fortnightly sessions (£750)
Please note that this package is for dietary support only. We cannot provide supplement advice, support symptoms or discuss test results in these sessions. Clients who would like support with supplements and test results will need to complete the initial paperwork and commit to regular consultations with our RNTPs.
conventional support
A functional medicine approach may not be for you. Or perhaps you are working with the team and you would like some practical advice for managing your diagnosis that is out of the remit of an RNTP. Rachael is a highly respected, retired MND/ALS specialist Consultant Nurse, with 42 years of experience in the NHS and 25 years of experience coordinating the Oxford MND care centre. She now offers support to clients with MND/ALS and other neurogenerative conditions, and their family members, with the following:
New to MND
Support navigating an MND/ALS diagnosis
What should I expect
Options for counselling
Available NHS support/services
Financial support e.g. PIP funding/Continuing Health Care funding/other funding and resources
What additional support is available e.g. MNDA
Advice on genetic testing and what to consider
Specific symptom management
Breathing issues
Swallowing
Saliva management
Mucus production
Bowel movements
Neck support
Paralysis
Speech
Pain
Sleep
Guidance on medication options (pros and cons)
ALS medications
Other medications (skin, gut etc)
Equipment
Equipment options (for movement/paralysis, breathing, mucus, pain etc).
Support regarding PEG/RIG
Blended diets
Relationships
Advice on relationship management
Rachael is available on a Wednesday afternoon. Once you have scheduled your consultation, you will be sent a questionnaire to let Rachael know what you would like to cover in your session. A 30-minute consultation is £75, and a one-hour consultation is £150.
To schedule a consultation with Rachael, fill out the contact form below, or reach out to us at admin@younutritionclinic.com
understanding your test results
People often contact us feeling overwhelmed and confused, having run multiple Functional tests elsewhere, which have not been fully explained or acted upon. To support these clients, Kerry offers a one-hour test review consultation, which is £150. Note that if you have multiple test results, you will likely require more than one session to review these.
Please note that this package is for educational purposes only. We cannot provide bespoke dietary, supplement or lifestyle advice in these sessions. Clients who would like this support will need to complete the initial paperwork and commit to regular consultations with our RNTPs.
understanding and supporting your genes
For those who are not yet ready to work closely with a practitioner but would like to understand their genetic SNPs and would like some general guidance on nutrient support, Kerry offers ALS-focused Nutrigenomic packages:
Package 1: A 30-minute consultation plus 1 LifeCodeGX panel (methylation): £375
Package 2: A 1-hour consultation and two LifeCodeGX panels (methylation, detoxification): £649
Package 3: A 1.5-hour consultation and three LifeCodeGX panels (methylation and detoxification plus metabolics OR minerals and metals): £925
Further panels can be ordered on request. More information on the panels offered by LifeCodeGX can be found here
Note that the guidance provided in these packages is general support only. No specific supplement guidance can be provided without a full understanding of life and health history.
Clients who incorporate Nutrigenomic testing into their clinical appointments through a subscription model pay £185 per panel plus a one off cost of £70 for your DNA swab, plus shipping. Results are discussed as part of your consultation with your practitioner.