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Supporting MND/ALs 

 

Kirstie heads up the MND/ALS/PLS team at You Nutrition Clinic, alongside Kerry (RNTP), Deborah (RD) and Rachael (RN). We work with people at any stage of their journey, from symptom onset to the advanced stage. We work closely together as a team on every case to ensure our approach is empathetic, thorough, and evidence-based. 

While there is no cure for MND/ALS, we believe that there is a lot that can be done to support symptoms, wherever you are on your MND/ALS journey.

functional support

 

We start by taking a full health history, mapping your life and looking for any drivers of symptoms and health concerns. We focus on dietary intake and optimising gut health, and then work systematically throughout the body, using nutrients, lifestyle changes and environmental considerations to optimise liver health, metabolic health, hormonal health, immune health, mitochondrial health, and brain health. We may run a variety of tests along the way, depending on your budget, to monitor your health markers, and to assess your nutrient status, nutrigenomics, metabolomic markers, immune markers, environmental exposures and mitochondrial function. 

A functional approach to MND/ALS is complex. There are a lot of considerations, and as such, the minimum package we offer is an initial 1.5 hour consultation plus two one hour follow-up consultations. However, we recommend that new clients commit to 6 months of consultations at a minimum frequency of every four weeks. We schedule all of our MND/ALS/PLS clients quarterly, with the option to edit frequency as needed.

An initial 1.5-hour consultation is £250 and follow-up one-hour consultations are £165To support clients who require longer-term support, we offer a discounted rate when 6 follow-up consultations are purchased, reducing the cost from £165 per hour to £150 per hour. 

For information regarding commonly utilised tests (including costs), go to our FAQs page

To arrange a free 20-minute initial chat with Kirstie or Kerry to discuss your diagnosis and to better understand how she can support you, reach out to us at admin@younutritionclinic.com 

conventional support

A functional approach may not be for you. Or perhaps you are working with the team but you would like some practical advice for managing your diagnosis that is out of the remit of an RNTP.

 

Rachael is a highly respected, retired MND/ALS specialist Consultant Nurse, with 42 years of experience in the NHS and 25 years of experience coordinating the Oxford MND care centre. She now offers support to clients with MND/ALS and other neurogenerative conditions, and their family members, with the following: 

New to MND: 

  • Support navigating an MND/ALS diagnosis

  • What should I expect 

  • Options for counselling

  • Available NHS support/services

  • Financial support e.g. PIP funding/Continuing Health Care funding/other funding and resources

  • What additional support is available e.g. MNDA

  • Advice on genetic testing and what to consider

 

Specific symptom management: 

  • Breathing issues

  • Swallowing

  • Saliva management

  • Mucus production

  • Bowel movements

  • Neck support

  • Paralysis

  • Speech

  • Pain

  • Sleep

 

Guidance on medication options (pros and cons): 

  • ALS medications

  • Other medications (skin, gut etc)

 

Equipment: 

  • Equipment options (for movement/paralysis, breathing, mucus, pain etc). 

  • Support regarding PEG/RIG 

  • Blended diets

 

Relationships: 

  • Advice on relationship management

Appointments are currently available on Wednesday afternoons. Once you have scheduled your consultation, you will be sent a questionnaire to let Rachael know what you would like to cover in your session. 30-minute consultation is £75, and a one-hour consultation is £150. 

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To schedule a consultation with Rachael, fill out the contact form below, or reach out to us at admin@younutritionclinic.com 

 

 

understanding and supporting your genes 

For those who are not yet ready to work closely with a practitioner but would like to understand their genetic SNPs and would like some general guidance on nutrient support, Kerry offers ALS-focused Nutrigenomic packages:

 

Package 1: A 30-minute consultation plus 1 LifeCodeGX panel (methylation): £350

Package 2: A 1-hour consultation and two LifeCodeGX panels (methylation, detoxification): £600

 

Package 3: A 1.5-hour consultation and three LifeCodeGX panels (methylation and detoxification plus metabolics OR minerals and metals): £850

Further panels can be ordered on request. More information on the panels offered by LifeCodeGX can be found here

Note that the guidance provided in these packages is general support only. No specific supplement guidance can be provided without a full understanding of life and health history. 

Contact

Complete the contact form and someone will be in touch with you as soon as possible.

 

For further inquiries, please contact the clinic at admin@younutritionclinic.com
 

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