Supporting MND/ALs 

 

Kirstie heads up the MND/ALS/PLS team at You Nutrition Clinic, alongside Kerry (RNTP), Deborah (RD) and Rachael (RN). We work with people at any stage of their journey, from symptom onset to the advanced stage. We work closely together as a team on every case to ensure our approach is empathetic, thorough, and evidence-based. ​While there is no cure for MND/ALS, we believe that there is a lot that can be done to support symptoms, wherever you are on your MND/ALS journey.

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no stone unturned

our 'all-in' programme for supporting Mnd/als

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No Stone Unturned is a tiered, intensive support programme for those living with MND/ALS. This multi-faceted, all-inclusive monthly subscription, designed to take the stress of following a functional approach.

 

This programme includes functional testing, core nutraceuticals, and regular consultations and check-ins with Kirstie or Kerry. Additional support includes bespoke regular breath and movement consultations with Rae and consultations with Rachael for practical advice. 

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We start by taking a full health history, mapping your life and looking for any drivers of symptoms and health concerns. We focus on dietary intake and optimising gut health, and then work systematically throughout the body, using nutrients, lifestyle changes and environmental considerations to optimise liver health, metabolic health, hormonal health, immune health, mitochondrial health, and brain health.

 

To assess this, we run a variety of functional tests along the way to monitor your health markers and your nutrient status. We use tests that identify variations in genes (SNPs) that predispose us to nutrient deficiency and biological challenges, imbalances in our gut microbiome, imbalanced metabolites, immune markers and pathogen load, environmental exposures, oxidative stress, neuroinflammation and mitochondrial function. 

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Tier 1: intensive + 

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- An initial 1-hour comprehensive assessment and information gathering session 

- A 1-hour consultation every 2 weeks to support with bespoke diet, lifestyle, and nutraceutical recommendations

- Intermittent 30-minute 'check-in' consultations via Zoom

- Continual access to your practitioner via Practice Better messenger

- Access to our Movement and Breath on-demand course

- Optional check-ins with Rachael, our MND consultant nurse and patient advocate

- Optional 1-1 breath and movement sessions with Rae, our Breath and Movement practitioner

- Baseline food and herb-based nutraceuticals developed in conjunction with Synergetic Botanicals 

- Functional testing throughout the programme, including: 

• Standard blood tests

• Functional stool testing

• Nutrigenomic panels to determine your predisposition for methylation and detoxification capacity, the best dietary approach based on your genetic predisposition, how well you absorb and utilise nutrients, so that an optimised long-term diet and nutrition plan can be developed for you. 

• Metabolomic testing to understand your current metabolic health and nutrient need

• Mitochondrial function tests

• Immune health markers

• Tests to determine toxin and pathogen levels

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tier 2: intensive

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- An initial 1-hour comprehensive assessment and information gathering session 

- A 1-hour consultation every 2 weeks to support with bespoke diet, lifestyle, and nutraceutical recommendations

- Continual access to your practitioner via Practice Better messenger

- Access to our Movement and Breath on-demand course

- Optional check-ins with Rachael, our MND consultant nurse and patient advocate

- Optional 1-1 breath and movement sessions with Rae, our Breath and Movement practitioner

- Baseline food and herb-based nutraceuticals developed in conjunction with Synergetic Botanicals 

- Functional testing as above

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tier 3: Paced +

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- An initial 1-hour comprehensive assessment and information gathering session 

- A 1-hour consultation every 4 weeks to support with bespoke diet, lifestyle, and nutraceutical recommendations

- Intermittent 30-minute 'check-in' consultations via Zoom 

- Access to our Movement and Breath on-demand course

- Optional check-ins with Rachael, our MND consultant nurse and patient advocate

- Optional 1-1 breath and movement sessions with Rae, our Breath and Movement practitioner

- Baseline food and herb-based nutraceuticals developed in conjunction with Synergetic Botanicals 

- Functional testing as listed above

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tier 4: paced

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- An initial 1-hour comprehensive assessment and information gathering session 

- A 1-hour consultation every 4 weeks to support with bespoke diet, lifestyle, and nutraceutical recommendations

- Access to our Movement and Breath on-demand course

- Optional check-ins with Rachael, our MND consultant nurse and patient advocate

- Optional 1-1 breath and movement sessions with Rae, our Breath and Movement practitioner

- Baseline food and herb-based nutraceuticals developed in conjunction with Synergetic Botanicals 

- Functional testing as listed above

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To learn more about costs and to better understand how our No Stone Unturned programme can support you, reach out to us at admin@younutritionclinic.com 

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basic support package

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Given the complexity of an MND/ALS/PLS diagnosis, all clients are required to sign up for our 'onboarding package', which consists of an initial 1.5-hour consultation (£250) plus two follow-up consultations, which are 1 hour in duration (£165 per consultation). The onboarding package is £580. This allows us to fully delve into your life and health history, diet, lifestyle, and current environmental exposures, and to begin setting out a framework of support for you.

 

Following this, we require clients to commit to consultations for a minimum of 6 months, at a frequency that best suits your need for support and your finances. Typically, clients schedule these appointments at four-weekly intervals. Clients who purchase 6 or more follow-up consultations receive these at the discounted rate of £150 per consultation. 

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We schedule all of our basic support package MND/ALS/PLS clients quarterly, with the option to edit frequency as needed. Please note that the minimal requirement is one consultation every 8 weeks. We are no longer able to work with clients who are not able to commit to our minimum requirement, as regular monitoring of dietary and supplement intake is essential. 

 

​The basic package does not include functional testing. For information regarding commonly utilised tests (including costs), go to our FAQs page

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ketogenic diet support

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We now offer 1-1 support for those who would like to follow a ketogenic diet. Deborah and Kerry have both completed advanced ketogenic diet training with the American Nutrition Association. We offer two packages:

 

- A three-month package consisting of an initial 1-hour consultation and 12 x 30-minute weekly sessions (£1185)

- A three-month package consisting of an initial 1-hour consultation and 6 x 30-minute fortnightly sessions (£675)

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Please note that this package is for dietary support only. We cannot provide supplement advice, support symptoms or discuss test results in these sessions. Clients who would like support with supplements and test results will need to complete the initial paperwork and commit to 

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conventional support

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A functional approach may not be for you. Or perhaps you are working with the team but you would like some practical advice for managing your diagnosis that is out of the remit of an RNTP.

 

Rachael is a highly respected, retired MND/ALS specialist Consultant Nurse, with 42 years of experience in the NHS and 25 years of experience coordinating the Oxford MND care centre. She now offers support to clients with MND/ALS and other neurogenerative conditions, and their family members, with the following: 

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New to MND: 

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• Support navigating an MND/ALS diagnosis

• What should I expect 

• Options for counselling

• Available NHS support/services

• Financial support e.g. PIP funding/Continuing Health Care funding/other funding and resources

• What additional support is available e.g. MNDA

• Advice on genetic testing and what to consider

 

Specific symptom management: 

• Breathing issues

• Swallowing

• Saliva management

• Mucus production

• Bowel movements

• Neck support

• Paralysis

• Speech

• Pain

• Sleep

 

Guidance on medication options (pros and cons): 

• ALS medications

• Other medications (skin, gut etc)

 

Equipment: 

• Equipment options (for movement/paralysis, breathing, mucus, pain etc). 

• Support regarding PEG/RIG 

• Blended diets

 

Relationships: 

• Advice on relationship management

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Appointments are currently available on Wednesday afternoons. Once you have scheduled your consultation, you will be sent a questionnaire to let Rachael know what you would like to cover in your session. A 30-minute consultation is £75, and a one-hour consultation is £150. 

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To schedule a consultation with Rachael, fill out the contact form below, or reach out to us at admin@younutritionclinic.com 

 

 

understanding and supporting your genes 

For those who are not yet ready to work closely with a practitioner but would like to understand their genetic SNPs and would like some general guidance on nutrient support, Kerry offers ALS-focused Nutrigenomic packages:

 

Package 1: A 30-minute consultation plus 1 LifeCodeGX panel (methylation): £350

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Package 2: A 1-hour consultation and two LifeCodeGX panels (methylation, detoxification): £600

 

Package 3: A 1.5-hour consultation and three LifeCodeGX panels (methylation and detoxification plus metabolics OR minerals and metals): £850​

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Further panels can be ordered on request. More information on the panels offered by LifeCodeGX can be found here

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Note that the guidance provided in these packages is general support only. No specific supplement guidance can be provided without a full understanding of life and health history.